Nonprofit ยท National Organization for Rare Disorders
National Organization for Rare Disorders patient assistance
Financial help for people with certain rare diseases with medicines, insurance premiums, co-pays, testing and travel, plus a patient services line. It is financial help, not an appeals service. Condition-specific.
Know before you go
The page says its programs may help with the cost of treatment, insurance premiums, co-pays, diagnostic testing and travel. Programs are listed by diagnosis: search for your condition, and if it is listed, apply through that program. If your condition is not listed, you may not be able to get help here. The page describes financial help and does not describe help appealing an insurance denial.
- Cost
- Not stated
- Where
- Nationwide
- How to start
- Search your diagnosis on the page and use the Apply Online button, or call the Patient Services line at 203.616.4328.
- Phone
- 203.616.4328, as printed on the provider's page
- Have ready
- Your diagnosis; Your insurance details; Information about the bill or cost you need help with
Where this comes from
- Provider
- National Organization for Rare Disorders
- Source we read
- https://rarediseases.org/patient-assistance-programs/
- Date we read it
- . This is not a fresh check.
- Date the provider printed
- Not displayed
- What we checked
- We read the provider's public page. We have not verified availability, eligibility or outcomes for any individual.
Other starting points
- Program or service
1-800-MEDICARE: talk to a person about Medicare
The Medicare phone line and live chat, open all day every day. Staff can point you to the right step for a complaint, and can pass an unresolved complaint to the Medicare Beneficiary Ombudsman.
From Medicare (Centers for Medicare & Medicaid Services)
- Program or service
American Cancer Society 24-hour helpline
A phone and chat line staffed around the clock by cancer information specialists who answer questions and connect you to services. It is an information and referral line, not an appeals service.
From American Cancer Society
- Program or service
An Arm and a Leg: First Aid Kit
An archive of articles and starter packs from the podcast An Arm and a Leg, including a starter pack on what to do if you are in collections for medical debt. General reporting on health care costs, not appeal steps.
From An Arm and a Leg